I hope this thread is the right place to write this. It may even help someone else. I'm in the moderate risk group due to being on an immunosuppressant biologic and I couldn't figure out what the difference in advice for the high risk group and moderate risk group was. I finally know what is the difference between them in terms of COVID-19 advice.
In short if your in the high risk group you will get a letter and there is support avilable for things like shopping
If your in the moderate risk group you won't get a letter and there isn't any official support.
In short your on your own. But rest assured it is recommend you don't leave your house or garden for both risk groups!
So who decides which group one falls into? Your rheumatology department.
Some departments are sending letters to all patients. Others are targeting some and the reminder are sending out none. So it is a postcode lottery as to which group you'll end up in.
No idea which line my department is taking. I know they are not writing letters for employers but that might be something separate.
I was watching an webinar from the National Axial Spondyloarthritis Society and they said follow the advice of your local health specialists as they know you.
On the positive side at least, those in the moderate risk group don't need to stay 3 steps away from someone else in their household, when inside and early research indicates that those on bioligics, such as Humira, may not be at a greater risk than people not on bioligics. So the advice for the moderate risk group has built in caution due lack of worldwide data. I live alone so the 3 steps rule difference is personally irrelevant in my situation.
If ones employer needs a letter, to show why they shouldn't travel into their work place, then it is recommended you speak to your GP as rheumatology departments are having staff redeployed to other parts of the hospitals that they work for. I've had a text message from the department I am under saying they are not sending letters for employers due to a lack of staff and can't answer e-mails or phone calls.
NASS did say there isn't much advice for the moderate risk group, so in some respects this group is in the hardiest position. They may feel they don't want to go out to work. Ut they may be struggling to get a letter to help them.
On a positive note, they did say whether you go out to exercise is your choice. If you are in an area where the place is extremely quiet, you might consider it to be low risk.
When I was out on Sunday I managed to stay 2ms away from people most of the time. Just once I was aware of people caming behind me. I tried my best for 2 hours. Perhaps I should have put a note on me saying please strictly social distance yourself from me as I'm in thr moderate risk group. Would need to be fair large or they might need to come 3 steps closer to read it!
On top of this my Stoma Care Nurse thought it was OK for me to go out for exercise but seriously social distance myself and avoid shopping if I can. I can indeed avoid that as I have others to do it on my behalf.
The moderate risk group advice from NASS is not to exercise and only go shopping if you really don't have anyone else to go for you.
I'd have thought one might get more space with exercise than shopping but perhaps that's because I live in Guildford and not London.
Of course one needs food to survive and if the government snd/or your rheumatology department are not prepared to give you the help then so be it.
Hopefully more data will become available and the advice can be relaxed for the moderate risk group.